1st Review of Stephanie's Story--By Jim Bless-Round Table Reviews
22Q13. A number that by itself seems to the uninformed a title to a science fiction movie. Adding the phrase "Deletion Syndrome" to this vague number, however, gives that same uninformed individual little additional information, except that it sounds as if it is a terrible medical condition. Indeed, it is.
22Q13 Deletion Syndrome, is a rare but all too real medical condition that comes from a rare genetic defect in which part of the bottom chromosome is missing. Kathleen Wermuth, presents the story of her daughter, Stephanie. In this book of non-fiction, the author shares snapshots of life with her special child. Some are horribly tragic, yet other glimpses give STEPHANIE'S STORY a reason to cheer. Make no mistake, everyday life for the Wermuth's is a jambalaya of hardship and blessings. As the author states, life is no "ordinary ordeal."
If there was ever a book to take you so quickly to tears and then to joy in so short of a space of time, then STEPHANIE'S STORY is most assuredly it. Kathleen Wermuth splendidly and magically brings you into the days (and nights) of everyday life with Stephanie.
Beginning with an introduction concerning 22Q13 Deletion Syndrome, the author quickly flows into the joy of motherhood, only to learn that something with their precious daughter isn't quite right. In a whirlwind of medical conplications, we learn that the love this little family has is surely built upon a rock. In the trials and hardships to follow, instead of shattering this family, it only strengthens them. From humble beginnings, surrounded by moronic fools who haven't a clue of what was going on, to god playing egotistical doctors, and inept nurses- the Wermuths find solace in their unwavering love of each other, and God.
STEPHANIE'S STORY shows the nightmarish battle with insurance carriers and the Social Security Administration. The question is raised- "why should a child suffer because a piece of medical equipment costs too much?"
This wonderful book, is a must read! Kathleen Wermuth, is far, far too humble in her commitment for Stephanie. A very selfless, courageous mother, such as Kathleen, should be given a medal for her tenacity. I would overwhelmingly recommend this book to lovers of stories with a happy ending.
Moreover, I would recommend and advise doctors and health professionals to buy a few copies of this book to give to parents of other children born with this tragic disorder. The only thing I think would make this book even better would be for the author to add the website to gain more information on this disorder, and a donation website for future reserch.
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