Stephanie's Story...

---

Raising a child with multiple disabilities is an overwhelming ordeal, let alone the physical and emotional strain that comes with it. Stephanie's Story is the personal narrative of one parent's emotional journey in caring and loving for her daughter, born with a rare genetic birth defect-22Q13 Deletion Syndrome-which has left her unable to walk or speak, and medically fragile. Everyday life in itself is not typical. The story shows what tey endure, and what most people can't even comprehend is the multitude of medications, doctors, therapies and the specialized equipment, all to make life for their daughter as "typical" as possible. A love knows no handicaps, for it's unconditional. For a mother and a father, they only know that a child who requires so much has given them so much more in return. Beyond the heartaches, the hardships, and the handicap, they realize that they are truely blessed by a very special child.
Where Books Can Be Purchased... Amazon.com; Barnes & Noble; Publish America. Please inquire at your local bookstore!. PUBLISH AMERICA PO BOX 151 Frederick, MD. 21701 www.publishamerica.com ISBN# 1-4137-2715-8 Autographed copies available through the author, but are limited.
www.22Q13.com For more information on Phelan-McDermid Syndrome please visit this site.
22q13 Deletion Syndrome Foundation